Functional Healing of Multiple Sclerosis Against All Odds Post 3:
It Don’t Mean a Thing If It Doesn’t Have Your Swing
In dealing with MS, it is likely that you will explore the edges of what is known. The internet is your ally and friend. I particularly liked the Massachusetts General Hospital Neurology discussion boards listed by disease/condition. You will get many ideas from these boards. Almost nothing works for everyone. Almost everything discussed worked for someone.
You have to find out if that particular medication and energy method/diet/exercise/lifestyle change works for you and is important to your recovery. Make sure it is a low-risk treatment. You want to gather as much information from medical or other professional sources that are available.
Doctors are willing to do experimental procedures as long as you indicate that you are fully informed. Additionally, with my doctors, I always assured them that they did not have to worry about a malpractice suit.
Any treatment that doctors pursued on my behalf in good faith and with my full consent would never be pursued in court by me, especially when I knew there was a good chance the treatment would not work. My general rule for myself was that I would consider anything that had a three percent chance of helping and did no permanent damage. I was willing to accept temporary pain and inconvenience, if the procedure ultimately helped me and did no permanent damage. Your willingness to take risk and endure pain/inconvenience will determine what personal rule will work for you. I actively dreaded the idea that I ever would stop trying to improve my disability.
Accepting MS is not a clarion call to send up the white flag and go to sleep. Accepting multiple sclerosis means realizing what a physically, and in some cases mentally, burdensome situation you are in. It is like getting a flat tire on the interstate in the middle of a desert. You can bemoan that you have a flat tire. Whining will do you no good. Getting out of the car, getting outside of yourself and seeing what spare tire or parts you can find to fix the situation, is accepting that you have a flat tire and must do something.my
The difficult decision is whether to wait for help or to press on. Information is vital. Communication is penultimate. As in the example above, it is important to set up a communication system.
In the case of the flat tire, you want a smartphone to get information, such as how far it is to the nearest gas station. You obviously need it to call for help. In the situation of having a major “incurable” illness, you want information from the internet, books, and experts so that you obtain the best medical and alternative care, as well as adopting the best personal practices (diet, exercise, sleep schedule, daily routine, recreation, and so forth).
I was in a state of shock and surprised that the medical doctor did not tell me first instead of my wife. My wife was a physician and board certified psychiatrist. The doctor I supposed thought it was more prudent to tell my wife first. I now believe that he did tell me, but I did not want to hear any of it, so I repressed what he said. Being a psychologist does not guarantee that your mind will not defend itself by bold-faced use of repression.
Your subconscious is always measuring how much information you may be ready to accept.
His gut instinct was to make this a doctor-to-doctor consultation first, I thought. It was my hypothesis, that he did not want to endure another professional’s (I am a private practice clinical psychologist) reaction to a conundrum in his life. I thought his instincts were good. The real truth was my subconscious did not allow me to process the horrible news until I heard it from someone I loved, my wife. It is a blessing to have a significant other who tells you the truth, no matter what.
Dream interpretation is described in Dreams: Guide to the Soul which is available at http://www.drstevenfox.com. Using dreams was one of the twenty things I did to send multiple sclerosis into remission.
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